Fibrous Dysplasia/McCune-Albright Syndrome: Celebrating 25 Years of NIDCR Research

Event Details
Date
September 11, 2023
Time
9:00 a.m. – 12:30 p.m. EDT
Location
Lipsett Amphitheater, Building 10, NIH campus, Bethesda, Maryland. Following the symposium, a historical poster session and reception will be held on the FAES Terrace, Building 10.

How to Join: This event is free and open to the public; no registration is required. You may attend in person or join via videocast.

Event Description

Join us for a symposium to celebrate NIDCR’s 25-year legacy of research to understand and treat fibrous dysplasia/McCune-Albright syndrome (FD/MAS).

The event will feature Nobel Laureate Brian Kobilka, M.D., who won the 2012 Nobel Prize in Chemistry for his work on G-protein-coupled receptors.

Following the symposium, a historical poster session and reception will be held on the FAES Terrace, Building 10.

Agenda
Time Title Speaker
9:00 a.m. – 9:05 a.m. (ET) Opening and Welcome
Description
Janice Lee, D.D.S., M.D.

Janice Lee, M.D., D.D.S.
Clinical Director
NIDCR

9:05 a.m. – 9:25 a.m. Discovery of G Variants as the Cause of FD/MAS
Description
Allen Spiegel, M.D.

Allen Spiegel, M.D.
Dean Emeritus
Albert Einstein College of Medicine
Former Director
NIDDK

9:25 a.m. – 9:45 a.m. Fibrous Dysplasia: A Skeletal Stem Cell Disease
Description
Pam Robey

Pamela Robey, Ph.D.
Senior Investigator
Skeletal Biology Section
NIDCR

9:45 a.m. – 10:05 a.m. FD Bone Biology and Experimental Models
Description
Mara Riminucci, M.D., Ph.D.

Mara Riminucci, M.D., Ph.D.
Professor
Anatomic Pathology
Sapienza University, Rome, Italy

10:05 a.m. – 10:25 a.m. Clinical Studies in FD/MAS: Paradigm of a Rare Disease Informing Biology and Treatment
Description
Michael Collins, M.D.

Michael Collins, M.D.
Senior Investigator
Skeletal Disorders & Mineral Homeostasis Section
NIDCR

10:25 a.m. – 10:40 a.m. Break  
10:40 a.m. – 11:00 a.m. Current and Future FD/MAS Studies at the NIDCR
Description
Alison Boyce, M.D.

Alison Boyce, M.D.
Lasker Clinical Research Scholar
Metabolic Bone Disorders Unit
NIDCR

11:00 a.m. – 11:10 a.m. Patient Consortia

FD/MAS Alliance
International Consortium for FD/MAS

11:10 a.m. – 11:35 a.m. Patient Forum: An Interview With Patients  
11:40 a.m. – 12:25 p.m. Structural Insights into G-Protein-Coupled-Receptor Activation
Description
Brian Kobilka, M.D.

Brian Kobilka, M.D.
Nobel Laureate in Chemistry
Professor
Molecular and Cellular Physiology
Stanford University

12:25 p.m. – 12:30 p.m. Closing Remarks
Description
Dr. Rena D'Souza

Rena N. D’Souza, D.D.S., Ph.D.
Director
National Institute of Dental and Craniofacial Research

12:30 p.m. – 3:00 p.m. Refreshments, Historical Posters, and Networking, FAES Terrace  
Other Information
  • For a full listing of anniversary-related events and activities, visit our 75th anniversary webpage.
  • Sign language interpreting and CART (communication access real-time translation) services are available upon request to participate in this event. Individuals needing either of these services and/or other reasonable accommodations should contact Mary Daum at mary.daum@nih.gov or (301) 594-7559. Requests should be made at least five days in advance. To access Telecommunications Relay Services (TRS), call 711.
Last Reviewed
August 2023

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