Fibrous Dysplasia/McCune-Albright Syndrome: Celebrating 25 Years of NIDCR Research

Event Details

Date

September 11, 2023

Time

9:00 a.m. – 12:30 p.m. EDT

Location

Lipsett Amphitheater, Building 10, NIH campus, Bethesda, Maryland. Following the symposium, a historical poster session and reception will be held on the FAES Terrace, Building 10.

How to Join: This event is free and open to the public; no registration is required. You may attend in person or join via videocast.

Event Description

Join us for a symposium to celebrate NIDCR’s 25-year legacy of research to understand and treat fibrous dysplasia/McCune-Albright syndrome (FD/MAS).

The event will feature Nobel Laureate Brian Kobilka, M.D., who won the 2012 Nobel Prize in Chemistry for his work on G-protein-coupled receptors.

Following the symposium, a historical poster session and reception will be held on the FAES Terrace, Building 10.

Agenda

Time	Title	Speaker
9:00 a.m. – 9:05 a.m. (ET)	Opening and Welcome	Description Janice Lee, M.D., D.D.S. Clinical Director NIDCR
9:05 a.m. – 9:25 a.m.	Discovery of G_Sα Variants as the Cause of FD/MAS	Description Allen Spiegel, M.D. Dean Emeritus Albert Einstein College of Medicine Former Director NIDDK
9:25 a.m. – 9:45 a.m.	Fibrous Dysplasia: A Skeletal Stem Cell Disease	Description Pamela Robey, Ph.D. Senior Investigator Skeletal Biology Section NIDCR
9:45 a.m. – 10:05 a.m.	FD Bone Biology and Experimental Models	Description Mara Riminucci, M.D., Ph.D. Professor Anatomic Pathology Sapienza University, Rome, Italy
10:05 a.m. – 10:25 a.m.	Clinical Studies in FD/MAS: Paradigm of a Rare Disease Informing Biology and Treatment	Description Michael Collins, M.D. Senior Investigator Skeletal Disorders & Mineral Homeostasis Section NIDCR
10:25 a.m. – 10:40 a.m.	Break
10:40 a.m. – 11:00 a.m.	Current and Future FD/MAS Studies at the NIDCR	Description Alison Boyce, M.D. Lasker Clinical Research Scholar Metabolic Bone Disorders Unit NIDCR
11:00 a.m. – 11:10 a.m.	Patient Consortia	FD/MAS Alliance International Consortium for FD/MAS
11:10 a.m. – 11:35 a.m.	Patient Forum: An Interview With Patients
11:40 a.m. – 12:25 p.m.	Structural Insights into G-Protein-Coupled-Receptor Activation	Description Brian Kobilka, M.D. Nobel Laureate in Chemistry Professor Molecular and Cellular Physiology Stanford University
12:25 p.m. – 12:30 p.m.	Closing Remarks	Description Rena N. D’Souza, D.D.S., Ph.D. Director National Institute of Dental and Craniofacial Research
12:30 p.m. – 3:00 p.m.	Refreshments, Historical Posters, and Networking, FAES Terrace

Other Information

For a full listing of anniversary-related events and activities, visit our 75th anniversary webpage.
Sign language interpreting and CART (communication access real-time translation) services are available upon request to participate in this event. Individuals needing either of these services and/or other reasonable accommodations should contact Mary Daum at mary.daum@nih.gov or (301) 594-7559. Requests should be made at least five days in advance. To access Telecommunications Relay Services (TRS), call 711.

Fibrous Dysplasia/McCune-Albright Syndrome: Celebrating 25 Years of NIDCR Research

NIDCR Events Archive